More support for people living with cardiac disease

14/07/2017

The first cardiac genetic testing service supported by a fund set up in memory of the late Sir David Frost’s son was launched by his family in Belfast City Hospital last week.

Miles Frost, the son of the late broadcaster, died in July 2015 of hypertrophic cardiomyopathy (HCM), aged just 31. Miles had HCM, and it is believed he inherited the faulty gene responsible for the condition from his father.

Although Sir David didn’t die of HCM, his post mortem found the disease was present. Unfortunately, Miles and his brothers, Wilf and George, were not tested for HCM at the time.  

In response to his death the Frost family and British Heart Foundation (BHF) set up the fund with the aim to raise £1.5 million to set up a national cascade testing service for family members of those who have died of, or have been diagnosed with, HCM.

A newly appointed Miles Frost Fund /BHF nurse will support the existing Inherited Cardiac Conditions service and ensure that more people receive the screening and treatment they need to prevent sudden death.

Dr Alison Muir, consultant cardiologist at Belfast City Hospital, leads the Inherited Cardiac Conditions service. She said: "We are proud and privileged to be the first ICC service across the UK to launch a Miles Frost Fund/BHF nurse as part of our service and we are delighted to have Wilfred here to launch it for us.

"The Inherited Cardiac Conditions service in Belfast is already very successful in identifying genetic conditions and supporting families. Thanks to this extra funding we will be able to increase our work and support even more people potentially affected with inherited heart conditions."