Pioneering research into Congenital Heart Disease from Trust


Pioneering findings from research into children with congenital heart disease, have been revealed in a new book, edited by a Consultant Paediatric Cardiologist at Belfast Trust’s Children’s Hospital.

‘Congenital Heart Disease and Neurodevelopment: Understanding and Improving Outcomes’, is co-edited by Dr Frank Casey (pictured) who is considered an international leader in this field.

It brings together innovative work from the UK, Europe, and the US on children with congenital heart defects and looks at the development of the child as a whole - particularly the role of the brain and central nervous system - rather than simply focusing on treatment of the heart.

Findings show that adopting this approach has benefited the development of children and is now being implemented across Europe.

This landmark publication was written by Dr Casey together with Professor Christopher McCusker, former lead for the Doctoral programme for Clinical Psychology training in Northern Ireland.

The book is the culmination of a major research programme conducted in collaboration between the Trust’s Paediatric Cardiology and Clinical Psychology Departments.

About Congenital Heart Disease in Northern Ireland

Congenital Heart Disease is the most commonly occurring congenital abnormality. In Northern Ireland there are approximately 200 children per year born with heart defects

Sarah Quinlan, Chief Executive at Children's Heartbeat Trust, with whom the research was developed, said, “The book ‘Congenital Heart Disease and Neurodevelopment’ will see the doctors' work being used as a template for care all over the world.”

‘Congenital Heart Disease and Neurodevelopment: Understanding and Improving Outcomes’ is published by Elsevier.

The book is being supported by a newly released app, believed to be the first in the world dedicated to the care and needs of teenagers with CHD.