Paediatric Spina Bifida Clinic

The Paediatric Spina Bifida Clinic has a team of specialists who work together to look after babies and children with spina bifida, and to support their families. We try to offer a “one-stop” clinic where most issues can be dealt with in one visit.

The team includes

  • A neurologist/neurodisability paediatrician
  • Paediatric surgeons/urologists
  • Paediatric continence nurse specialists
  • Neurosurgeons
  • Orthopaedic surgeons
  • Radiology
  • A representative from SHINE (formerly ASBAH)
  • And, if necessary, physiotherapy, occupational therapy, speech and language therapy, social worker, etc.

How to access the Service

Referrals can be made by a

  1. General Practitioner (Family Doctor)
  2. Paediatrician (children’s doctor)
  3. Neonatologist (baby doctor)
  4. Other paediatric (children’s) specialist.

Location of Service

The Paediatric Spina Bifida Clinic is located at the Royal Belfast Hospital for Sick Children.
You can contact the Spina Bifida Clinic on 028 9063 5685.

Relevent Services

Adult Spina Bifida Clinic, MPH

External Links

SHINE (formerly ASBAH) A charity with techniques for living with spina bifida

Spina Bifida Association an American site with information about spina bifida and hydrocephalus

Read general information about spina bifida and hydrocephalus from a respected American website, KidsHealth, which also has separate information aimed at children and teenagers.

KidsHealth-information on Spina Bifida

KidsHealth- information on Hydrocephalus

Frequently Asked Questions

Is Belfast considering performing antenatal/fetal surgery for spina bifida?
The potential risks and benefits of this approach are still being evaluated around the world. The Spina Bifida Association of America charity has a very useful summary of the current situation in ‘The Study in Perspective’ section at the bottom of this web-page. In the meantime, it is recommended that such surgery only be performed in centres that have undergone intensive specific training, and who are part of an ongoing research programme.

My child with spina bifida is being recommended treatment that is different to what another child we know is receiving. Why?
No two children with spina bifida are affected in exactly the same way, so each child’s treatment is recommended specifically to be best for them. Please ask the doctor at our clinic if you have particular queries. However, it is up to you as parents to make the final decision about your child’s treatment.